Investigator: Brian Sisk, MD, MSCI
Institution: Washington University (St. Louis, MO)
Title of Project: Developing an electronic health record tool to improve patient knowledge and self-management for complex lymphatic anomalies
Institution: Washington University (St. Louis, MO)
Title of Project: Developing an electronic health record tool to improve patient knowledge and self-management for complex lymphatic anomalies
Year: 2023
Investigator: Carrie Shawber, PhD
Institution: Columbia University (New York, NY)
Title of Project: Assessment of proteasome inhibitors for the treatment of complex lymphatic anomalies
Year: 2022
Investigator: William Polacheck, PhD
Institution: University of North Carolina at Chapel Hill (Chapel Hill, NC)
Title of Project: Development of an inducible tissue engineered model for understanding cellular dynamic in GLA
Year: 2022
Investigator: James Bennett, MD, PhD
Institution: Seattle Children’s Hospital (Seattle, WA)
Title of Project: Examination of cell free DNA and single-cell based expression profiling of chylous effusions in complex lymphatic anomalies
(funded by LGDA Europe)
Year: 2022
Investigator: Natasha Harvey, PhD
Institution: University of South Australia (Adelaide, Australia)
Title of Project: Defining the mechanisms by which MDFIC mutations cause central conducting lymphatic anomaly (CCLA)
Year: 2021, 2022*
*second year of funding