Patient Resources

The Lymphatic Malformation Institute works closely with the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) for patient related initiatives.

The LGDA is a 501(c)(3) nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by Generalized lymphatic anomaly (GLA)/Lymphangiomatosis and Gorham-Stout disease.  The LGDA strives to improve patient’s quality of life by providing valuable resources, a venue where patients and families can meet others with similar needs and experiences, ask questions, and locate physicians.

Please visit to learn about:

•Background of lymphatic and bone biology
•Clinical course of disease
•Diagnostic procedures
•Physician information
•Treatment options
•Ongoing clinical trials
•Patient nutrition
•Current news and events


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