The Lymphatic Malformation Institute works closely with the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) for patient related initiatives.
The LGDA is a 501(c)(3) nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by Generalized lymphatic anomaly (GLA)/Lymphangiomatosis and Gorham-Stout disease. The LGDA strives to improve patient’s quality of life by providing valuable resources, a venue where patients and families can meet others with similar needs and experiences, ask questions, and locate physicians.
Please visit www.LGDAlliance.org to learn about:
•Background of lymphatic and bone biology
•Clinical course of disease
•Ongoing clinical trials
•Current news and events