The Lymphatic Malformation Institute is a 501 (c)(3)nonprofit organization whose mission is to improve the clinical care of patients with Generalized lymphatic anomaly (GLA)/Lymphangiomatosis and Gorham-Stout disease by funding research focused on identifying effective therapies for treating these rare disorders of the lymphatic system.

UPenn Orphan Disease Center

RFA now open for GLA and GSD pilot grants