Partners

LGDA Alliance – The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham’s disease by promoting research that will identify effective treatments and ultimately a cure for these diseases. The Alliance is committed to providing support to members of the patient community and their families; education for the community, professionals, and the general public; and hope to those affected by these rare lymphatic malformations. LGDA Website >>

 

Liam’s Land – Lymphatic malformations are abnormal channels and cysts filled with clear lymphatic fluid. Processing this fluid thru the vascular system is very slow resulting in swelling to the affected area. More than 70% of the time, these lesions are in the neck area or axilla. However, the malformations can form in any area of the body. Cause is unknown but it is believed that the error occurs during fetal development. Recent findings by Harvard Medical School and other researchers have shown hope for further genetic testing. Most LM’s are discovered before the age of 2. MRI (magnetic resonance imaging) or CT (computed tomography) is typically used to make a diagnosis. Liam’s Land Website >>